Cerebra Research Gateway Trial CERE:0010282

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Cerebra is a unique charity set up to help improve the lives of children with brain related conditions through researching, educating and directly supporting children and their families.  We recognise the child with a disability as a child first and foremost and try to work for them as children rather than for their disability.  Cerebra are based in Carmarthen but have a UK wide remit. 

Part of what we do is to provide information that is relevant to parents and carers of children with disabilities as well as the professionals who come into contact with them. By empowering parents and professionals with knowledge, we can help them to improve the lives of the children they care for and support.  Our research has shown that parents of disabled children can feel very alone and bewildered by all the services and information out there.   Cerebra are trying to provide one recognisable source of information for parents in order to provide consistent, streamlined and above all clear guidance. We have designed an Information Gateway which signposts parents to helpful, reliable, and trustworthy organisations and relevant information.  We see this tool as a first port of call for parents in their quest for information regarding conditions, therapies, and other areas relevant to their child's condition.

To make sure we design this Gateway as effectively as possible we would value feedback from parents and professionals whilst it is still in its pilot phase.  We would greatly appreciate your comments.



Instructions

Please click on the link which will take you to our pilot Information Gateway. 


http://www.cerebra.org.uk/ResearchGatewayTrial



The categories which need to be evaluated are those in purple (education, health, therapies and finance).



After exploring the Gateway, please click on the relevant 'Feedback Form' tab (parent or professional) on the left hand side of the Gateway and submit your comments.



Many thanks,



The Cerebra Research Team.

Catherine Hylton - Research Officer - Research
Email: CatherineH@cerebra.org.uk

Tel: 01267 242 557


Cerebra - For Brain Injured Children & Young People 
Second Floor Offices, The Lyric Building, King Street, Carmarthen, SA31 1BD 
Main Line: +44 (0) 1267 244200. Fax: +44 (0) 1267 244201 Freephone: 0800 32 81 159
www.cerebra.org.uk 
http://www.facebook.com/cerebracharity/ http://www.twitter.com/cerebrauk/ http://www.youtube.com/CerebraCharity



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